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Events and Activities

MRDS Survey

Calling all rare disease patients and parents of children with rare disease in Malaysia. MRDS is a conducting a survey on the experience of patients and families living with with rare disorders in Malaysia. Please take a few minutes to do this online survey by clicking on the link below. It is in English and […]

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Program ‘Menerokai Ilmu Bersama Keluarga’

6 Julai 2013 – PPJJM bersama dengan Jabatan Kebajikan Perubatan PPUM (JKP) telah menganjurkan satu lawatan sambil belajar bersama keluarga ke Petrosains KLCC. Seramai 50 orang yang terdiri daripada keluarga-keluarga PPJJM dan ahli keluarga staf JKP telah mengikuti lawatan ini. Keluarga-keluarga PPJJM dan JKP telah dibawa untuk melawat dan berinteraksi dengan pelbagai pameran, permainan dan […]

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Intec Charity Run 2011 – Run for Life

SHAH ALAM: Students of International Education College (Intec), UiTM Shah Alam, organized a charity run recently. It was the first time the students organized a charity run as part of their co-curricular activities. “The students have to organize projects that benefit the community as part of their co-curricular activities. It is an opportunity for them […]

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Rare Disease Day 2010

Three events were carried out in conjunction with Rare Disease Day 2010 in Malaysia. 1. RARE DISEASE DAY EXHIBITION An exhibition was organized at Pusat Perubatan Universiti Malaya, Kuala Lumpur. It spanned a period of four days and provided information on the organisation, as well as details on Rare Disease Day and its significance. Reading […]

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1st Malaysia Conference on Rare Disorders & Medical Genetics 2011

Persatuan Penyakit Jarang Jumpa Malaysia (PPJJM) bersama dengan Persatuan Genetik Perubatan Malaysia (PGPM) telah menganjurkan Persidangan Penyakit Jarang Jarang Jumpa Kali Pertama dan Persidangan Perubatan Genetik 2011 yang berlangsung pada 9-10 Jun 2011 di Petaling Jaya. Persidangan ini unik kerana untuk kali pertama di Malaysia ia membawa keluarga-keluarga yang terjejas dengan penyakit jarang jumpa, para […]

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A Visit to Zoo Negara

The Malaysian Rare Disorders Society (MRDS) together with the Kiwanis Club of USJ (Kiwanis) organized a visit to Zoo Negara on 26th June 2010. Eight families participated in the visit. It was a special day for the MRDS families as it was a rare opportunity for them to go out on a family outing. The […]

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MPS Forum in Taiwan Oct 2009

Our President, Dato Hatijah Ayob represented MRDS at the 2nd Educational Forum For Families and Caregivers on Mucopolysaccharidoses (MPS) on 11-13 Oct 2009. This event was organised by Taiwan MPS Society. For more information on MPS Taiwan, you can visit their website www.mpssociety.org.tw

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