“Join Together for Better Care” is an apt theme for this year’s Rare Disease Day in Malaysia. Three rare disease patient support groups, namely the Malaysian Rare Disorders Society, the Malaysia Lysosomal Diseases Association and the Malaysia Metabolic Society have joined together for the first time to organize the Rare Disease Day event in Malaysia.
This follows from a successful 2nd Malaysia Conference on Rare Disorders organised by the coalition effort of the abovesaid three societies in 2013. One of the recommendations from the Conference is that the rare disease patient support groups speak with ONE voice.
We are in the midst of planning the event which will most probably be held in 22th March 2014 in KL/PJ. Further updates on the event will be posted soon. We welcome other rare disease patient support groups in Malaysia to contact us at firstname.lastname@example.org.