OUR TEAM

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Prof Dr. Thong Meow Keong
Advisor

Prof Thong is a paediatrician, clinical geneticist, academic researcher and teacher. A strong proponent of healthcare providers to care and advocate for patients with rare diseases.

1
Dato Hatijah Binti Ayob
Founder

Since 1970, interned and trained in manpower, social and  welfare whilst working with a British company for 10 years. Upon resignation, helped formed and served, to date, with three health related NGOs  namely – the Heart, Tobacco advocacy and Rare  Disease.  

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Nadiah Hanim Binti Abdul Latif
President

Nadiah is a sustainability, child & RD rights advocate, committed to championing compassion, collaboration and cohesion to solve pressing and future needs for the RD community.

2
Allida Binti Muhammad Said
Vice-President

Allida is a data-driven RD mentor, committed in developing young leaders & entrepreneurs and passionate about empowering RD families. Promotes social responsibilities in the development of young professionals.  

3
Noor Muha Bin Aziz
Secretary

Muha is a person living with RD who promotes Independent Living philosophy. Believes in  equal opportunities, self-determination, and self-respect.

4
Azizah Binti Hamid
Treasurer

Azizah helps MRDS make critical financial decisions by collecting, tracking and verifying the finances through her motto of minimizing cost and maximising results.

9
Mohammad Syafiq Zulkarnain
Committee member

Proud to be born with Hypohidrotic Ectodermal Dysplasias , Heroes World Rare Disease Day 2021. MRDS Representative for Ectodermal Support Group Malaysia

5
Noor Asmin Binti Mohamad Khassim
Committee member

An affectionate advocate of special needs children's access to health care and education. Asmin’s daughter Mawaddah, is diagnosed with a rare chromosome disorder called Wolf-Hirshhorn Syndrome

6
Muhammad Azfar Firdaus Bin Azlah
Committee member

An RD advocate living with albinism who is dedicated to raising awareness and championing the rights of people living with rare diseases.

8
Nor Azura Binti Abdullah
Committee member

Azura is a social entrepreneur of The Batik Craft. Her team provides training, coaching and mentoring for housewives (B40 families) to generate income from home. Azura, who was a caregiver for more than 10 years to her late husband with MELAS Syndrome, is also an advocate for people with the syndrome.

7
Kartina Ismail Amir
Committee member

Tina is a karate exponent and an inclusive homeschooling advocate who believes that access to quality experiential education is a right that everyone should have access to