OUR TEAM
Prof Thong is a paediatrician, clinical geneticist, academic researcher and teacher. A strong proponent of healthcare providers to care and advocate for patients with rare diseases.
Since 1970, interned and trained in manpower, social and welfare whilst working with a British company for 10 years. Upon resignation, helped formed and served, to date, with three health related NGOs namely – the Heart, Tobacco advocacy and Rare Disease.
Nadiah is a sustainability, child & RD rights advocate, committed to championing compassion, collaboration and cohesion to solve pressing and future needs for the RD community.
Allida is a data-driven RD mentor, committed in developing young leaders & entrepreneurs and passionate about empowering RD families. Promotes social responsibilities in the development of young professionals.
Nor Zakaria Shah is a dedicated caregiver and advocate for Duchenne muscular dystrophy (DMD). Leading a financial agency, he trains new planners and volunteers with MRDS since 2014, making a meaningful impact in the community.
Dina Syukrah, a devoted caregiver and mother of children with dwarfism, is the founder of Parents of Little People Malaysia. Committed to fostering empathy, she advocates for acceptance, empowerment, and a supportive community, championing diversity and inclusion.
An affectionate advocate of special needs children's access to health care and education. Asmin’s daughter Mawaddah, is diagnosed with a rare chromosome disorder called Wolf-Hirshhorn Syndrome
