ABOUT US
A future where all individuals living with rare disorders and their families in Malaysia experience better quality of life, through full recognition, equitable opportunity and access to support, including for health and social care.
STRATEGIES
Advocate
We advocate & champion for access to quality healthcare, inclusive education, employment opportunities and other areas relevant to enable the rare disorders community in Malaysia to lead a life with dignity & wellbeing.
Collaborate
We collaborate with the Government and all stakeholders across the rare disease ecosystem to drive & support the formulation and implementation of national policies, action plans and laws that are more inclusive for persons and families living with rare disorders and disabilities.
Enable
We work together to develop strategies and champion programs that focus on participation and enablement to unite the rare disorders community, foster camaraderie, accelerate stakeholder capacity and raise public awareness on rare disorders in the country and beyond.
