ABOUT US
A future where all individuals living with rare disorders and their families in Malaysia experience better quality of life, through full recognition, equitable opportunity and access to support, including for health and social care.
STRATEGIES
Advocate
To advocate for, and to champion access to quality healthcare, inclusive education, employment opportunities and other relevant areas to support the rare disorders community in Malaysia and to put dignity and wellbeing at its centre.
Collaborate
To collaborate with stakeholders and the Government to drive and support the formulation and implementation of national policies, action plans and laws that are more inclusive related to rare disorders and persons with disabilities.
Unite
To develop strategies and champion programs that focus on supporting and uniting the rare disorders community, patient groups and raising public awareness on rare disorders and disabilities.
