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Archives: Event

3rd Genomics & Genetic Counselling Conference Genetic Counselling Society Malaysia-GCSM

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January 18, 2023 No Comments

Majlis Penyerahan Tabung Hospital dan Geran Pendidikan Pelajar OKU Lembaga Zakat Selangor (MAIS)

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January 18, 2023 No Comments

We & I Artfest 2022

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January 18, 2023 No Comments

Phelan Mc Dermid Run

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January 18, 2023 No Comments

Adult Amyloidosis Multi-stakeholder Summit 2022

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January 18, 2023 No Comments

MRDS Northern Region #raredisease100kmchallenge with Jungle Run

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January 18, 2023 No Comments

Budget Discussion with Timbalan Menteri

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January 18, 2023 No Comments

Dramatari Ratu Kuning Langkasuka di Istana Budaya

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January 18, 2023 No Comments

First virtual meet-up with the Transthyretin Amyloid Cardiomyopathy (ATTR-CM) patient families in Sarawak.

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January 18, 2023 No Comments

Awareness & Fundraising via #raredisease100kmchallenge

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January 18, 2023 No Comments
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Please state your name, identity card number or business registration number, mailing address and contact phone number so that we can issue an official receipt. Malaysian residents can apply for tax deduction with our official receipt.

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We represent and look out for the welfare of individuals including their families that are affected by rare disorders.

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  • HOME
  • ABOUT US
    • WHO WE ARE
    • VISION & MISSION
    • OUR TEAM
    • YOUTH EMPOWERMENT
  • WHAT ARE RARE DISORDERS
    • INTRODUCTION OF RARE DISORDER
    • LIST OF RARE DISORDER
    • OUR STORIES
  • RARE DISEASE DAY
  • Information
    • NEWS
    • EVENTS
    • PUBLICATIONS
    • VIDEO
  • Join Us
    • MEMBERSHIP
    • VOLUNTEER
  • CONTACT US
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